The Role of Data in Life Sciences Research: Insights and Perspectives
The event aims to explore the opportunities and challenges related to the secondary use of data, with a specific focus on the European Data Space. In an increasingly data-driven society, digital information—generated across sectors and activities—is becoming a key asset for shaping innovation and driving value creation. Within a fast-changing regulatory and technological landscape, access to and reuse of data collected for purposes beyond their original intent represent a strategic lever for research, innovation, and competitiveness.
In-person attendance is by invitation only. For more details, please reach out to clustersdv@poloaa.it. Online participation is open to all interested attendees.
By participating in the event, you acknowledge and agree to the EIT Health Privacy Policy (Privacy Policy - EIT Health) and consent to the processing of your data by EIT Health InnoStars, EIT Health, and Cluster Scienze Della Vita (Polo Tecnologico Alto Adriatico Andrea Galvani) for reporting purposes and, if necessary, to comply with audit/review obligations towards the relevant official bodies. Additionally, you agree that you may be photographed and/or filmed during the program, and that EIT Health InnoStars, EIT Health, and Cluster Scienze Della Vita (Polo Tecnologico Alto Adriatico Andrea Galvani) may use these images both for reporting purposes and to promote activities implemented by these organizations.
By participating in the event, you acknowledge and agree to the EIT Health Privacy Policy (Privacy Policy - EIT Health) and consent to the processing of your data by EIT Health InnoStars, EIT Health, and Cluster Scienze Della Vita (Polo Tecnologico Alto Adriatico Andrea Galvani) for reporting purposes and, if necessary, to comply with audit/review obligations towards the relevant official bodies. Additionally, you agree that you may be photographed and/or filmed during the program, and that EIT Health InnoStars, EIT Health, and Cluster Scienze Della Vita (Polo Tecnologico Alto Adriatico Andrea Galvani) may use these images both for reporting purposes and to promote activities implemented by these organizations.
AGENDA
[ 09:30 - 10:00 ]
Registration & Welcome coffee
Registration & Welcome coffee
[ 10:00 - 10:10 ]
Opening Remarks
Opening Remarks
Stefano De Monte
Cluster Manager
Life sciences Cluster of Friuli Venezia Giulia
Life sciences Cluster of Friuli Venezia Giulia
Alessia Rosolen
Regional Minister for Labour, Training, Education, Research, University, and Family, Autonomous Region of Friuli Venezia Giulia
[ 10:10 - 10:15 ]
Morning Health Talks Introduction
Morning Health Talks Introduction
Chiara Maiorino
EIT Health InnoStars Ecosystem Lead for Italy
[ 10:15 - 10:55 ]
Keynote Presentations
Keynote Presentations
Sinead O'Connor
Adjunct Associate Professor Trinity College Dublin and CEO Ethomix, London.
European Health Data Space: Opportunity and Innovation
European Health Data Space: Opportunity and Innovation
Tanja Stamm
Institute for Outcomes Research, Center for Medical Data Science, Medical University of Vienna and Ludwig Boltzmann Institute for Arthritis and Rehabilitation
Patient-reported health data - the basis for a new era in healthcare
Patient-reported health data - the basis for a new era in healthcare
Julius Juodakis
Head of the Health Data Team, State Data Agency, Lithuania
Experiences and Practices so far of the pilot project on the secondary usage of Healthcare Data in Lithuania
Experiences and Practices so far of the pilot project on the secondary usage of Healthcare Data in Lithuania
[ 10:55 - 11:15 ]
Company & Research Spotlights
Company & Research Spotlights
Vincenzo Carbone
Senior R&I Project Manager, InSilicoTrials
In silico methods and real world data: new pathways for healthcare innovation
In silico methods and real world data: new pathways for healthcare innovation
Enrico Tongiorgi
Professor - Department of Life Sciences, University of Trieste
Traditional versus innovative uses of large data sets in the drug discovery process
Traditional versus innovative uses of large data sets in the drug discovery process
Sebastiano Saccani
Chief Product Officer, Aindo S.p.A.
Synthetic Data: the new global standard for data access and sharing
Synthetic Data: the new global standard for data access and sharing
[ 11:15 - 11:30 ]
Coffee Break
Coffee Break
[ 11:30 - 12:30 ]
Panel Discussion – Q&A
Panel Discussion – Q&A
Challenges and opportunities in the use of secondary data in research
Gianna Zamaro
Central Director
Central Directorate for Health, Social Policies, and Disability
Central Directorate for Health, Social Policies, and Disability
Doriano Maranzana
Customer Service Director
Insiel SpA
Insiel SpA
Erika Cecchin
Acting Director
Experimental and Clinical Pharmacology Unit, Centro di Riferimento Oncologico di Aviano (CRO), IRCCS National Cancer Institute
Experimental and Clinical Pharmacology Unit, Centro di Riferimento Oncologico di Aviano (CRO), IRCCS National Cancer Institute
Peter Fenici
Head of Medical Innovation
AstraZeneca S.p.A.
AstraZeneca S.p.A.
Ennio Tasciotti
Moderatore
Director Human Longevity Program
IRCCS San Raffaele Rome, Full Professor
San Raffaele University Rome
Director Human Longevity Program
IRCCS San Raffaele Rome, Full Professor
San Raffaele University Rome
[ 12:30 - 13:00 ]
Closing Remarks
Closing Remarks
Chiara Maiorino
EIT Health InnoStars Ecosystem Lead for Italy
Stefano De Monte
Cluster Manager
Life sciences Cluster of Friuli Venezia Giulia
Life sciences Cluster of Friuli Venezia Giulia
Franco Scolari
Director Polo Tecnologico alto Adriatico Andrea Galvani
Ketty Segatti
Director
Specialist Operational Unit (UOS) for Research, Innovation, European Social Fund Plus, and Other EU Funds
Specialist Operational Unit (UOS) for Research, Innovation, European Social Fund Plus, and Other EU Funds
[ 13:00 - 14:00 ]
Light lunch & Networking
Light lunch & Networking